Futility II
Michael A. Gillette, Ph.D.
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In order to continue the discussion of futility that
was begun in the last newsletter, two important tasks
must be successfully completed. First, it must be
understood just what futile care is. In order to have
any profitable conversation about the moral implications
of futility, we must have a clear picture in our minds
of what, exactly, it is about which we are speaking.
Second, we must consider what the ethical relevance of
futility is once we have a clear understanding of the
concept.
I would like to begin the project of considering
futility by accomplishing the second task first. It seems
obvious that if a particular treatment's being futile or
not being futile is morally irrelevant, then we can
eliminate the need to get any precise sort of definition
of the concept. A better understanding might be
interesting, but it would not be imperative to have that
understanding in order to make responsible decisions
regarding the provision of care.
On the other hand, if it becomes clear that the concept
of futility plays an important role in defining the
ethical obligations of clinicians and facilities, then we
would be heavily invested in the project of understanding
better what futility is all about.
For the purposes of the moment, therefore, let us
loosely understand futility as having something to do with
care that is not going to work even if it is provided, and
leave the work of tightening up that definition until
later.
On the face of it, there seem to be two reasons why it
might be important to know whether a particular treatment
modality is futile or not, and why the condition of
futility would release a clinician from provision of the
care in question.
The first and most obvious reason to think that no
moral obligation exists to provide care that is futile, is
cost containment. The second and less obvious reason to
deny that a clinician has the obligation to provide futile
care is that the provision of such care might actually be
counter to the patient's own well being. It is possible
that in some particular situation a type of therapy that
is not going to do any good might also present the chance
of doing some harm. A clinician's obligation to "do no
harm" is therefore invoked in order to overrule any
request for futile therapy.
Uncharacteristically, I will take the first of these
two arguments first, and then move on to the second.
As noted, the first argument that might be generated to
support the claim that futile care ought not to be
provided, or at least that a clinician does not have an
obligation to provide care if it is futile, has to do with
the issue of cost containment. This argument would likely
take the following form. In this world of scarce medical
resources and insufficient health care dollars to go
around, it would be irresponsible to provide care to a
specific individual when that care will not provide a
benefit to that person, and when it could be used for the
benefit of another. It would be irresponsible, the
argument continues, to sentence two people to suffering
when only one person must suffer. The first person cannot
be helped (at least not with the therapy under scrutiny)
so his suffering cannot be relieved no matter what
happens. The second person can be saved, but doing so
requires shifting our attention away from person one and
placing it on person two.
This argument, compelling as it sounds, is actually
rather fragile. It depends on some very specific
assumptions for its survival. First, it depends on the
assumption that the mere shifting of attention away from
person one toward person two does no harm to person one
in-and-of-itself. Second, it depends on the fact that
there actually is a person two who will be helped if only
we shift our attention away from person one.
Obviously, the medical profession depends upon a
certain level of trust that patients have for the health
care system, and it is likely this trust could be shaken
if low probability cases are routinely ignored. As if the
concern for patient/physician trust were not already a
serious enough matter, we must also consider whether
direct emotional harm is done when a patient is denied
care because he is considered "hopeless".
Although this argument requires further discussion, it
actually begs some questions that we are not prepared to
answer this month. For instance, is patient trust a
reasonable goal in the provision of care that will have no
physiological benefit? Is the emotional well being of a
patient an important enough medical concern that it must
be weighed in when considering the efficacy of specific
treatment modalities? The reason that these questions are
beyond the scope of this month's column is that they force
us to consider more carefully what futility means, and
that is the first task that I have already put off until
second.
It would be sufficient for our present purposes, I
believe, to point out that the cost containment argument
will only work when failure to provide care would actually
free up resources that could actually be used by another
patient, and when such resources cannot be provided in any
other way than by refusing them to the first patient.
Having this important clarification in mind, let us assume
that such situations do exist, and that we are able to
recognize them reliably. The next step in the argument
will come next month.
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